I hope everyone is enjoying this beautiful weekend!! George and I decided we both need some relaxing time at home with the girls so we are taking shifts at the hospital. Today was my day with the girls and we enjoyed a nice swim at a friends pool. Maddie has only 9 more days of school and I am looking forward to some more summer days like today!! George is home now and finishing a movie with the girls and will have tomorrow to play!!
But for now we will rest in the exceptional care here at Children's. Today Landen switched from a NJ feeding tube (goes past his stomach to his small intestines) to a NG tube (goes to his stomach) and started on bolus feedings (instead of a slow continuous feed this is quicker, much like a bottle/nursing feed but usually over 1 hour) which he tolerated very well. The nurse said he seemed much happier after. He also took about 25 cc's of pedialyte from a bottlle with no problems! This is all great progress because one of the big measures they use before discharging is his eating and growing/gaining. They are also transitioning him from Procainamide to Flecainide. This is the medication that will help his heart rhythm to stay "normal". It can be administered orally and most likely what he will be coming home with. The EP team has yet to finalize any long term plans though. We are waiting till he has a few days on the new medication and see how he responds. He will have one more day of antibiotics and them hopefully take his central line out. They do need to have an IV still so today he got yet another line. They have used most of the traditional access points and now he had to get an IV on the top of his head! It sounds and looks more painful than it is... so I am told. All in all he is doing great!!
We thank you all so much for your prayers!!
Ashley, George, Madison, Lyla and Landen
Comments
Post a Comment