It's been a while since our last update and you all should know that for the Hatch house, "no news is good news". We will very rarely update unless there are changes. So with that said, here is an update.
Since our last post Landen has been fantastic! He is eating great! Growing great! And doing everything a normal 1.5 month old baby boy should be. Ashley and the girls are adjusting to another kid in the house during the day and my amazing wife has officially achieved super mom status as she can balance all this change like a champ :) (much better than I EVER could). I have returned to work and had my first official travel this week for what was supposed to be Tuesday early-Thursday late.
On Wednesday I got a call from Ashley in the AM saying that Landens O2 sats were reporting low after several attempts here at the house. She talked to the cardiologist at children's over the phone and they suggested she bring Landen to the local ER at Morton Hospital in Taunton just as a double check. While he was there they did confirm that his O2 Sats were lower than we expect which can be a sign of many things including complications to his band and pulmonary flow. Thankfully the staff at Morton knew enough to know that this was outside their expertise considering Landens history and made a call up to Childrens. As a Dad I love to hear that not only did they suggest he come up, but they immediately knew Landen by name :). So, Ashley and Landen took a little ambulance ride up to Boston, and called me with the update (I was in York, PA at the time and had driven there from Baltimore, MD).
Thankfully my sister Carolyn was staying at the house to help with things while I was gone, so the girls were in great hands. I was now also on my way to Pittsburgh, PA which was all the way across the state, so I continued my drive because it sounded like he would be just fine. At this time we really felt it was going to be a quick visit at Childrens, but as I drove across the state and Ashley spent time at Childrens our plans changed. Landen continued to drop his sats into the low 70's-high 60's and at some times they felt the need to administer O2 to help bring it up. Needless to say, it was time for me to come home early, so I changed my flight and had two hours to drive an hour and a half, drop off my rental, check a bag, get through security and board the plane before we took off. Guess what....I made it :)...but guess what else? The plane didn't. We were delayed which meant I may miss my connection in DC. Of course, that is what happened and after some very calm conversations (note the sarcasm) with the US Air officials, the earliest I could get home would be around 3pm the next day (Thursday). So I did what every irrational Father would do who needed to get home to his family in a time of need...I rented a car and started driving at 10 PM from DC to Boston! Meanwhile, the girls are safe with my sister and mom. Landen was also doing much better after having some adjustments to his Lasix.
This morning just as I was pulling into Boston (only to get a full flat tire in the tunnel before I dropped off the rental....fastest tire change I have ever done BTW at 8 minutes), Landen had another chest x-ray. This did show some fluid in his lungs, but not enough to be very worried about. The hope is that over time, the adjustment they made to his Lasix will help dry out his lungs. As I arrived finally at the hospital they were finishing his echo and doing rounds on him. It was so great to see activity as we hate to wait, but that didn't last long. We did wait the rest of the day till tonight for all the appropriate teams to come to agreement. Basically his echo looks great, his x-ray showed some fluid, but not enough to be overly concerned about. They are not 100% sure what the change is for him, but feel it is likely just due to his amazing growth and normal issues that "stage 1" (stage before the next surgery) patients go through. They did confirm however that he seams to be very stable at the 70-80 range now and we should continue to monitor at home. So that is where we are now! All of us are home AGAIN. We hope that this will be the last visit before his next procedure, but the reality is that he is complex so we need to be ready for change.
Now that we are home, it is just nice to see a happy, healthy and loved little boy among his family. The girls are so glad to have us back as well, and Autodesk (my company) could not have been more helpful and understanding through this process. We are happy this didn't turn into anything serious, but we also can tell first hand that God will prepare us for whatever we need to endure because he has held that burden before!
PS: There are so many details not shared here if you can believe that, but I just don't have energy (or feel the need to share more). Just know that Murphy's law was in full force over the past 48 hours and he lost!
Enjoying the journey,
George, Ashley, Madison, Lyla and Landen!!
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